A Rare Day to Celebrate Special Kids and FamiliesPosted:Feb 29, 2024 9:41 am
Leap Day! The rarest of days, which only comes around once every four years. While this day may be a trick of a calendar, it is also Rare Disease Day, a globally coordinated movement to bring awareness to those diagnosed with a rare disease.
A disease is considered rare when it affects fewer than 1 in 2,000 people. More than 300 million people around the globe are living with rare diseases, ones that often defy diagnosis or treatment. 70% of rare genetic diseases begin in childhood, and many of...More
Dragonflies Traveling the WorldPosted:Feb 8, 2024 1:21 am
At our gala this past January, Crescent Cove parents Amy and Andrew Gruber shared the story of their beloved son, Theo, who lived 53 days on Earth. He was born with a condition called Epidermolysis Bullosa or EB, a rare genetic disorder that causes skin to blister and tear with the slightest friction. Upon his birth, they were thrust immediately into the role of caregivers, providing hours of bandage changes, bathing, ointment application, and pain medications every day.
Within weeks it becam...More
Wonderful Time of the YearPosted:Dec 14, 2023 3:47 pm
From difficult times come ideas that sometimes have staying power. Crescent Cove’s Holiday Drive-Thru was one such idea.
In the first few years that our Home was open, we hosted a holiday party inside the House for our families and kids. During the pandemic, we had to find a creative way to get families together while keeping everyone healthy and safe. We decided to try a drive-thru idea, having families stay in their cars and receive gifts while cruising up the long driveway to our Home.
Children's Grief Awareness DayPosted:Nov 15, 2023 3:14 am
“Any child old enough to love is old enough to mourn.” Dr. Alan D. Wolfelt, author of Companioning the Grieving Child, a Soulful Guide for Caregivers
November 16 is Children’s Grief Awareness Day, a day to recognize that support can make all the difference in the life of a grieving child. One out of every 20 children will have a parent die before they graduate high school*, and that does not include those who experience the death of a sibling, a close grandparent, aunt or uncle, or friend...More
A Special Halloween CelebrationPosted:Nov 1, 2023 4:19 am
Recently, we said “so long for now” to a young adult who graduated from Crescent Cove’s services.
Crescent Cove provides respite and hospice care to children and young adults ages 0-21. Since we care for children with shortened life expectancies, we rarely have young adults who age out of our program when they turn 22. This year, we had two who became “graduates” of Crescent Cove.
Mari was just 16 years old when she came to Crescent Cove for the first time. Born with Spinal Muscular...More
A Message of TransitionPosted:Oct 9, 2023 3:08 pm
Our founder, Katie Lindenfelser, has decided to step away from the Executive Director role and continue to serve the organization concentrating on special projects and advocacy. We have selected Lyman Executive Search firm to assist in the recruitment of a new executive director. The news comes with mixed emotions, but we are excited to welcome someone new to lead Crescent Cove through the necessary growth to serve more families. Join us in wishing Katie the best of luck in her new role and st...More
Harmon Killebrew: A Champion StillPosted:Sep 26, 2023 3:48 pm
Even before Crescent Cove opened its doors, the Minnesota Twins have supported our Home, in large part due to the legacy of Harmon Killebrew and the efforts of his wife, Nita.
“Life is precious and time is a key element. Let’s make every moment count and help those who have a greater need than our own,” Harmon once famously said.
Though Harmon has been gone for 12 years, his generous spirit lives on and connections continue to be made, all in his honor.
Nita Killebrew was at the Crescen...More
Running for a MissionPosted:Aug 31, 2023 11:05 am
Chelsea is a self-described “beginner” runner, having only taken up the sport in the past year. But, she has already set a pretty big goal for herself — complete the 10-mile distance in the Twin Cities Marathon.
“When I learned that I could run the 10-mile and raise money for Crescent Cove, I had to sign up,” says Chelsea. “They have given our family so much, I am honored to support them and raise money for such a deserving cause.”
Crescent Cove is a participating charity in ...More
Back-to-School Fun for AllPosted:Aug 25, 2023 1:29 pm
Despite a triple-digit heat index, Crescent Cove families turned out for our 3rd annual Back-to-School event on August 23rd.
Families could cool off with a hose-down from a firetruck, or explore an air-conditioned police cruiser, thanks to the Brooklyn Center Police and Fire Dept. Guests mugged for the camera for silly film-strip photos or posed politely for family portraits by the lake.
One of our long-time families provided special event prizes for Crescent Cove kids, in memory of...More
End-of-Life Legislation Passes in MinnesotaPosted:Jun 30, 2023 12:59 pm
Among all of the bills that were voted into law this past Legislative session in Minnesota was a small but impactful piece that helps families of children with shortened life expectancies. With its passing, Minnesota became the first state that allows facilities to receive funds from the state when a child stays for end-of-life care at a residential hospice home. The bill passed with bipartisan support, was signed into law by Gov. Tim Walz and goes into effect July 1, 2023.
Funding provided by ...More